The Boy Who Would Not Break: Living with JHD, Anti-MOG, and an Unfinished Heart
The Boy Who Would Not Break is a deeply personal memoir by Sankesh Bhayani, who was diagnosed at a young age with rare and progressive neurological conditions. As his body begins to fail him in ways he cannot control, Sankesh turns to storytelling as an act of survival, resistance, and purpose.
The book traces his journey through diagnosis, uncertainty, and loss of normalcy—while confronting questions most people never have to face so early in life: What does success mean when the future is unclear? How do you keep going when independence slips away? And how do you leave something behind when time feels fragile?
Written with honesty and emotional clarity, this memoir is not just about illness, but about identity, courage, and choosing meaning over despair. Sankesh’s story moves beyond personal struggle to reflect the voices of countless families affected by rare diseases, offering readers insight, empathy, and hope.
At its core, The Boy Who Would Not Break is a testament to resilience